NEW MINISTER FOR WELFARE MINISTER OF MALAYSIA

NEW MINISTER FOR WELFARE MINISTER OF MALAYSIA
Badan Latihan dan Hidup Berdikari Malaysia (ILTC) pada 23hb Mac 2016 menyerahkan memorandum kepada ahli-ahli parlimen mendesak supaya golongan orang kurang upaya (OKU) dikecualikan daripada cukai barangan dan perkhidmatan (GST).

Disabled Members Protest

Disabled Members Protest
Disabled Members Protest at JPJ Wangsa Maju

ILTC Malaysia members staged a protest outside JPJ Wangsamaju KL.

ILTC Malaysia members staged a protest outside JPJ Wangsamaju KL.
Disabled group’s protest disabled drivers required to produce doc's medical report.

Thursday, 6 September 2012

Time to shine


Thursday September 6, 2012

Time to shine


The Paralympics has more than its share of inspiring moments.
SO, how has the non-stop action from the greatest show on Earth been treating you? I’m referring, of course, to the 13th Paralympic Games that kicked off in London last Wednesday. More than 4,000 of the best disabled athletes from 164 countries are taking part in one of the toughest competitions which will draw to a close on Sept 9. I’ve been trying to follow the action as much as I can on BBC Online, TV and radio.
As it turns out, it isn’t just the high octane events in the stadium that caught my attention. Here are some of the unusual, inspiring moments which provide food for thought:
Former Paralympic gold medallist Tanni Grey-Thompson (centre in wheelchair) carrying the Paralympic Flame on the torch relay in Piccadilly, London, prior to the opening of the Games on Aug 29.Former Paralympic gold medallist Tanni Grey-Thompson (centre in wheelchair) carrying the Paralympic Flame on the torch relay in Piccadilly, London, prior to the opening of the Games on Aug 29.
> Paralympics vs the Olympics: There has always been debate about running the Paralympics simultaneously with the Olympics. Now for the first time I can see why having the handicapped games separately has its advantages. A re-ignition of the Games three weeks after the Olympics ended effectively brought back all the sparks, enthusiasm and euphoria of the Olympics with a special focus on disabled sportsmen and women. To me, the Games could not have achieved quite the same effect had the handicapped athletes shared the limelight with the Olympians.
The opportunity allowed for a total immersion of disability sports and what it is all about. The BBC noted that the local and worldwide coverage and appetite for disabled sports – which had been dismally unequal for years – now bodes well for future Paralympics.
It was reported that 2.4 million of the 2.5 million tickets had been sold. There is a lesson here for our media in covering local disability sports. Disabled sports NGOs have always complained that various sports events for the handicapped were not covered by our media. Perhaps the NGOs must take some blame for not putting enough effort to highlight such information to the press.
> Disabled non-athletes not left out: As the BBC put it, the opening message was clear: “From the call for intellectual curiosity from Professor Steven Hawking, to the high wire arrival in the stadium of a double-amputee serviceman, topped off by the lighting of the cauldron by the winner of Britain’s first Paralympic gold medal over 50 years ago, disabled people excel in many areas, and not just sport.” This is a brilliant point. Life can be tough for people with disabilities who have to face daily struggles in a society that has not taken their needs into account. The organisers put much thought into every possible subtlety in the ceremony.
> Disabled people as pundits and commentators on radio and TV:This is a marvellous move. Instead of always getting the perspective of people who have no experience with disability, the “straight from the horse’s mouth” approach was commendable. And what a refreshing change which brought about a multitude of views. Whilst disability activists in Britain were looking forward to Paralympic 2012 to change negative perceptions about them, they were equally concerned about the “darker side to disability in Britain.”
Charities like Scope pointed out that attitudes to people with disabilities have noticeably worsened in the past year over government plans to cut welfare benefits. Scope hopes the Paralympics could help reverse this trend. Disabled actor and stand-up comedian Liz Carr, however, is worried that the Paralympics could divide disabled people by turning them into super men and women instead of who they really are – and not within the paralympian ideal.
Baroness Tanni Grey-Thompson, winner of 11 Paralympic gold medals and one of the world’s most successful wheelchair racers, likened the Games to fairy dust. “We sprinkle (it on) life as a disabled person; it shows a snapshot in time of some extraordinary people who train very hard, who are good at sport,” she said. “It is great while it lasts, but it’s probably not going to change the world, and certainly not on its own.”
Grey-Thompson would be the first to admit that while she can leave people far behind as she powers down the track, she still cannot get down an escalator to board an inaccessible tube train and needs the public’s help to do what they regard as ordinary things.
For continued coverage on the 2012 Paralympics go tobbc.co.uk/sport/0/disability-sport/.

Monday, 27 August 2012

ILTC Malaysia President & Secretary met KSU

Recently, we (President and Secretary) met Dato Dr. Noorul Ainur Mohd Nur (KSU) in the Program of Merisik News Ministry at Batu Caves, Selangor.

Many guests who come to meet and asking the Secretary-General of the Ministry.








Maxis Home Adoption Programme Launch 18.07.2012









Friday, 24 August 2012

Living with lupus


Thursday August 23, 2012

Living with lupus

WHEEL POWER
By ANTHONY THANASAYAN


SYSTEMIC Lupus Erythematosus (SLE) is a chronic auto-immune disease in which the immune system attacks the body’s cells and tissues, resulting in inflammation and tissue damage.
Dayang Norhidayah Ngah who hails from Kuala Terengganu knows all too well about SLE. Her nightmare began back in November 1999.
Dayang Norhidayah Ngah takes her battle with lupus in her stride.Dayang Norhidayah Ngah takes her battle with lupus in her stride.
Dayang was 10 when she came down with a fever that refused to go away.
“My parents thought it was nothing unusual and took me to the clinic,” said Dayang.
When Dayang’s feet started to swell, she was sent to the Kuala Terengganu General Hospital. Despite a month of intensive medical tests, Dayang’s condition deteriorated and she was referred to several child specialists in Kuala Lumpur.
“I remember Dec 9, 1999, clearly. It was the day the hospital became my second home,” said Dayang. “It took a full two weeks before my ailment was finally diagnosed. Back then, no one in my hometown had heard of SLE.”
Lupus attacked Dayang’s kidneys, causing inflammation. She had to go through many rounds of treatment to stay alive.
Dayang was put on dialysis. She was given steroids which resulted in her having a “moon face,” a common side-effect.
Lupus also attacked her brain, and Dayang had a violent seizure and ended up in ICU. It was another four months before her condition was brought under control.
Despite missing many lessons in school, Dayang managed to get straight As in the UPSR exams.
“My mum taught me Maths, Science and English when I was admitted to hospital and at home when I was not able to attend classes. My sisters helped, too.”
Today at 23, Dayang takes her battle with SLE in her stride. She shuttles between Kuala Terengganu and Kuala Lumpur for her treatments.
Dayang is on peritoneal dialysis, which is done at home, as her kidneys have been damaged.
Dayang maintains a positive outlook despite not being able to live a normal life and enjoy outdoor activities like her peers.
“I am easily susceptible to illness and infections. If I were exposed to sunlight for 15 minutes, I would develop high fever and break out into rashes. There would be reddish butterfly marks on my skin, especially on the areas where my skin was exposed to the sun.
“Sometimes this makes me feel depressed. But I always remember how fortunate I am to have a very supportive family. My Abah is my rock. He is a positive and strong man. He never gives up hope. Ma is a godsend. Her patience inspires me. My sisters Kak Long, Ngah, Obie and Ana, always cheer me up when I am down.
“Although I live with lupus, I don’t allow it to stop me from pursuing my dream to get a diploma in accounts in Universiti Teknologi Mara, Shah Alam.
“I’ve come to accept reality and I try not to lose hope. I’ve learnt that the best way to deal with SLE is to take my medication conscientiously, and understand the disease and its impact on me, both physically and emotionally. It is also vital to follow the advice of the doctors and learn to stay on top of lupus.
“Despite what I have to go through, I am able to have a good quality of life,” added Dayang.

Friday, 17 August 2012

Phone booths for the disabled by next year


Monday July 30, 2012

Phone booths for the disabled by next year

PENANG is ready to introduce disabled-friendly public telephone booths by the end of the year.
Penang Municipal Council councillor Muhammad Sabri Md Osman said two telecommunication companies were already planning with the council to install this type of public telephone booths.
“Among the guidelines set by the council for the companies are at least one disabled-friendly public telephone booth in shopping complexes, government offices and public places such as the ferry terminal, bus station and airport,” he said.
He said the disabled-friendly telephone booth should also be placed near information centres.
They should be easily visible with a big signboard.
“The telephone must be easily reachable for those on wheelchairs and have a foldable seat for those with mobility problems.
“The coin slot should be between 0.90m and 1.20m from the ground,” he said after the council meeting held at the City Hall recently.
He said the phone should have push buttons with Braille font for the visually impaired.
“The space of the booth should be around 1.2m by 0.85m.
“There must be no obstructions in the area to allow the disabled to access the booth either from the front or the sides,” he said.
He said the telephone wire should also be at least 0.75m in length.

Selamat Hari Raya Aidilfitri


Hi All,

I take this opportunity to wish everyone
Selamat Hari Raya Aidilfitri & a safe journey for those who Balik Kampong.

For all others have a Happy Holiday & Open House visits.

Cheers,
G. Francis Siva
President of ILTC Malaysia

Monday, 6 August 2012

Annual General Meeting of the Independent Living & Training Centre Malaysia


9th Annual General Meeting of the Independent Living & Training Centre Malaysia which was held on 24th of June 2012, at 10.10am, at ILTC Malaysia, 76, Jalan Taman Garing 4, Taman Garing, 48000 Rawang, Selangor Darul Ehsan.













 Speech by Y.B. Gan Pei Nei – ADUN Rawang

Y.B. thanked President and ILTC Malaysia Committee Members for inviting her to the AGM.

Y.B. congratulated ILTC Malaysia for a significant role and making a meaningful contribution in developing the capabilities and improving the knowledge skills for the disabled.

Y.B. informed that, all 12 local councils (PBT) in Selangor have been ordered to set up OKU Technical Committee by EXCO Kerajaan Negeri Selangor. At presently, the only Councillor Mr. Anthony Thanasayan from MBPJ is doing very well but other 11 local councils are not active. Therefore she expressed that, this matter will bring up again to the Selangor government initiatives to push and help all local authorities in Selangor to setting up of technical committees for the disabled and have linked more closely with the local council and provide input to the developments of the disabled.

Y.B. added that, in Rawang town there are not accessible for the disabled therefore she requested ILTC Malaysia to work closely with local council to provide positive and effective ideas to build a better structure for the disabled.  

In conclusion, Y.B. informed that, there are some facilities provided by Kerajaan Negeri Selangor example educational facilities, Air percuma, Tabung Warisan Anak Selangor, Skim Mesra Usia Emas etc…. She has requested our members to register under the skim to benefit.




















The 9th Annual General Meeting ended at 11.30 am. with a vote of thanks to President and lunch was served to all present.