NEW MINISTER FOR WELFARE MINISTER OF MALAYSIA

NEW MINISTER FOR WELFARE MINISTER OF MALAYSIA
Badan Latihan dan Hidup Berdikari Malaysia (ILTC) pada 23hb Mac 2016 menyerahkan memorandum kepada ahli-ahli parlimen mendesak supaya golongan orang kurang upaya (OKU) dikecualikan daripada cukai barangan dan perkhidmatan (GST).

Disabled Members Protest

Disabled Members Protest
Disabled Members Protest at JPJ Wangsa Maju

ILTC Malaysia members staged a protest outside JPJ Wangsamaju KL.

ILTC Malaysia members staged a protest outside JPJ Wangsamaju KL.
Disabled group’s protest disabled drivers required to produce doc's medical report.

Sunday, 28 July 2013

IT Training technology program 25-7-2013

Maxis organized second time offers IT Training technology program that enable wheel chairs users in personal development  to make efficient and effective use of computers, networks, and information which was held on 25-7-2013 at Maxis Academy, Menara Sunway, Selangor.
 
Over 20 ILTC Malaysia members were participated. It’s a wonderful program for our members.   










Hope arises

Lifestyle


Published: Thursday July 25, 2013 MYT 8:00:00 AM 


Hope arises
Keshvinder Kaur had been an able-bodied person all her life until a health condition put her permanently in a wheelchair more than two years ago.
Keshvinder Kaur had been an able-bodied person all her life until a health condition put her permanently in a wheelchair more than two years ago.
Things are looking up again for former air stewardess with multiple sclerosis.
I RECENTLY bumped into an interesting and inspiring person in a local shopping mall near my home in Petaling Jaya, Selangor.
Her name is Keshvinder Kaur. She had been an able-bodied person all her life and was working as an air stewardess for a well-known airline company until a health condition put her permanently in a wheelchair more than two years ago.
“When that happened, I suddenly felt my whole world come crashing down,” said Keshvinder, over a cuppa in the mall.
Our wheelchairs were parked next to each other in the small cafe.
“As a walking person before, I initially felt extremely bound in my physical movements when I had to adjust to using a wheelchair in 2011,” said Keshvinder, 36, who is now paralysed from her chest down.
“My stomach to my legs lost their sensory abilities completely. I couldn’t feel a thing on my body, nor my bladder or bowel movements.
“I had difficulty in wearing my clothes and sitting up. I couldn’t sit straight without support. My balance whilst sitting was extremely bad and I couldn’t pick up anything from the floor for fear of falling off my wheelchair.”
This was how it was – and to a certain point, still is – for Keshvinder after she was diagnosed with multiple sclerosis (MS) in late 2004.
Keshvinder had to use walking aids for mobility until she was forced to switch to a wheelchair. (MS is a disease where the covering of the nerves gradually becomes destroyed, damaging a person’s speech, sight and ability to move.)
The events leading up to Keshvinder finally discovering that she had MS were a nightmare. A few weeks before her wedding in June 2003, she could sense something was terribly wrong with her body, especially her legs, but couldn’t pinpoint the problem. Her legs became so weak that she even fell down while trying on her wedding dress in the boutique. A doctor she consulted brushed it off as “pre-wedding stress”.
However, the typical symptoms of MS persisted. A week after her wedding, Keshvinder rushed to a hospital because of excruciating pain along her spine and had a shot of morphine to ease the pain. Then other signs appeared – tingling on both arms and legs, trembling in the hands, numbness and the inability to walk up the stairs or in a straight line.
It took two trips to a neurologist in a private hospital, more medication and the use of a walking stick for almost a year before Keshvinder was diagnosed with MS at the age of 27.
“Initially, I had no clue as to what MS was and how it was going to affect me over the years,” explained Keshvinder. “The information I looked up on the Internet – about its effects on sufferers – frightened me instead of calming my frazzled nerves. So, I stopped reading about MS at once. That was probably my biggest mistake because I went into denial about my condition instead of learning all I could about the disease and finding ways to tackle it effectively.”
Keshvinder recalled it wasn’t difficult to pretend that everything would be OK then because she was still able to walk using her mobility aid and her body wasn’t all that weak.
“The prospect of ending up in a wheelchair never ever occurred to me,” said Keshvinder.
The former flight attendant who now uses a wheelchair to move around and is a mother of a six-year-old boy has a much more positive outlook in life and about the challenges before her. “I am able to see a whole new world in a different perspective, that is, a disability perspective. I was actually ‘a handicapped’ person when I was walking. I have closed my old book and opened a new chapter in my life. A comma was put into my life, not a full-stop.”
Keshvinder now tries to do all the normal chores with her disability, including going shopping and to public events. Her handicap is no longer the problem; she says people’s negative perceptions are.
She has been offered a job at an English language centre near her home. It’s an ideal job for her as she can help, not only the able-bodied to enrich their interpersonal skills, but also disabled persons, too.
However, the problem is that the centre is currently located on the first floor of a building. To reach the centre, Keshvinder has to go up 30 steps! She hopes that some kind souls will chip in for a wheelchair lift so that she can start work.
If you wish to help, contact our columnist at 012-220 3146/e-mail athanasayan@yahoo.com.

Wednesday, 10 July 2013

6th ILTC Malaysia Committee meeting held 29th June 2013

6th ILTC Malaysia Committee meeting held 29th June 2013 at 76, Jalan Taman Garing 4, Taman Garing,  48000 Rawang, Selangor Darul Ehsan.



Mika Singh Live in Malaysia | 5th July 2013

Awesome Concert - It was a fun filled night.

On behalf of our organization, we would like to Thank you CEO of Hitman Solutions, Rohit Rampal for sponsored 25 Tickets towards watch Mika Singh Live in Malaysia.

We really enjoyed the Mika Singh show.
















The ceremonial funeral for Late Mr. Munusamy at the Cheras Lutheran Congregation

The ceremonial funeral for Late Mr. Munusamy at the Cheras Lutheran Congregation at Taman Alam Jaya Cheras which was held on 9/7/2013 (Tuesday) attended by the members of ILTC Malaysia 







Monday, 8 July 2013

CONDOLENCES FROM ILTC MALAYSIA

08/07/2013

CONDOLENCES FROM ILTC MALAYSIA

MR. MUNUSAMY BROUGHT SO MANY HAPPY MOMENTS IN OUR LIFE AND LEFT US WITH A TREASURE TROVE MEMORIES. WE WILL NEVER BE ABLE TO FORGET HIM. WE ARE PRAYING FOR YOU IN DEED DIFFICULT TIME.

WE SEND OUR LOVE AND HEARTFELT SYMPATHY TO MADAM VASANTHY AND HER FAMILY. WE MEMBERS OF ILTC MALAYSIA WOULD LIKE TO EXPRESS OUR DEEPEST CONDOLENCES ON THE DEATH OF MR. MUNUSAMY (COMMITTEE MEMBER OF ILTC MALAYSIA). 

MAY HIS SOUL REST IN PEACE.AMEN

FUNERAL SERVICE FOR THE LATE MR. MUNUSAMY WILL BE HELD AT CHERAS LUTHERAN CONGREGATION ON TUESDAY (09-07-2013) AT 2.00PM.CHURCH ADDRESS:26, JLN. ALAM JAYA 19, TMN. ALAM JAYA. 43200 CHERAS, SELANGOR.

THEN TO CREMATOTION AT CHERAS CREMATORIUM AT 4.PM

G. FRANCIS SIVA
PRESIDENT OF ILTC MALAYSIA

Saturday, 6 July 2013

For and by the disabled

Columnists

Wheel Power

Published: Thursday July 4, 2013 MYT 12:00:00 AM
Updated: Friday July 5, 2013 MYT 12:30:33 PM

For and by the disabled

The Independent Living and Training Centre helps the handicapped feel good about themselves.
THE Independent Living and Training Centre (ILTC) in Taman Garing, Rawang, Selangor, is unique in that it is run by the disabled, for the disabled.
It was set up 13 years ago by a team consisting of tetraplegics (persons paralysed from the neck down) and paraplegics (paralysed from the waist down).
ILTC was formed primarily out of the frustration of the disabled who find that many centres for the disabled are run by able-bodied people who know very little about the needs of the handicapped. Unless one is disabled, it is virtually impossible for someone to understand what a handicapped person’s life is like.
Since its inception, the centre has reached out to more than 200 people. Most of them have walking difficulties or are wheelchair-users.
Many of them came from very poor backgrounds. Most of them were uneducated, neglected by their families and abused.
At the centre, new arrivals are taught to feel good about themselves and their condition.
By meeting and observing other persons with disabilities, they are inspired to take control of their lives, and learn more about their disability and how to deal with it effectively.
ILTC has run a number of self-help programmes which range from acquiring independent living skills to cooking, washing and sewing.
Therapy sessions include peer counselling and animal-assisted therapy.
Recently, some members from ILTC had the opportunity to attend a full-day training session at the Maxis Academy in Subang Jaya, Selangor. The programme was part of a series of sponsored events organised by Maxis when it decided to adopt ILTC under its Maxis Home Adoption Programme a year ago.
More than a dozen wheelchair-users had a delightful time learning how to transfer data, download music and back up their phones.
The participants came from all over the Klang Valley. Maxis provided meals for the eager learners. There was even a portable disabled-friendly toilet.
Maxis also donated two laptops to ILTC.
ILTC is also actively involved in championing the rights of the disabled. In March, disabled persons who had been getting a monthly allowance of RM300 from the Welfare Department, received a rude shock when they went to the bank and discovered that their allowance had been stopped.
Apparently the Welfare Department had stopped all payments as it was in the midst of upgrading the records of all disabled workers.
“I found this out when I met with the director involved last month,” said Francis Siva, president of ILTC.
“The Welfare Department’s latest exercise raised some important issues. It was most unprofessional of the department to keep recipients of aid in the dark. Many of them thought that the payments were delayed. They only heard the news when they called the department and learnt that their allowances had been stopped.
“They were told that they had to fill up a form – JKM Borang 20 – to qualify for financial aid.”
Francis said RM300 may not seem much to people without disabilities but for the handicapped, it makes a world of difference.
“The money goes towards paying for food, medication and wheelchair repairs, among others.”
Francis expressed regret that the Welfare Department had not consulted disabled groups before going ahead with its decision to get the disabled to fill up Borang 20. He said the need to fill up the said form annually from now on, would make the lives of the disabled more difficult.
“At the department’s Kuala Kubu and Gombak offices, for instance, we had to struggle with dangerously steep ramps and there were no disabled-friendly toilets even though we had complained about this three years ago. The department personnel should visit the homes of every welfare recipient to help them fill up the forms. If a record upgrade is necessary, it should be done every five years or so, and not every year,” said Francis, who is a tetraplegic.

Friday, 5 July 2013

The Star Article on 04/07/2013

The Star Article on 04/07/2013

Page 1






Page 2


Tuesday, 2 July 2013

Baik Berita untuk Selangor

Pengurangan Cukai Taksiran 50 Peratus Kepada OKU

20/3/2013 : Kerajaan Negeri bersetuju untuk mengurangkan bayaran cukai taksiran sebanyak 50 peratus kepada Orang Kelainan Upaya (OKU) yang memiliki rumah di seluruh Selangor dan diskaun in berkuatkuasa serta merta.
Pengurangan cukai taksiran itu bertujuan membantu meringankan beban OKU yang perlu berdepan dengan kos sara hidup yang semakin tinggi di Selangor terutamanya di kawasan bandar. Tetapi rumah itu disewakan kepada pihak lain, mereka tidak layak menikmati pengurangan tersebut.

Wednesday, 26 June 2013

Thanks to Maxis

ILTC Malaysia would like to thanks very much to Maxis for installed free wireless Maxis Broadband modem on 25/06/2013 to our charity organization

it is great and making more meaningful help towards our work.




Saturday, 22 June 2013

Service at their doorstep, please

Thursday June 20, 2013


Service at their doorstep, please


‘Special counters should be available to disabled persons, and frontline staff should be trained on how to help persons with special needs,’ suggests Francis Siva.‘Special counters should be available to disabled persons, and frontline staff should be trained on how to help persons with special needs,’ suggests Francis Siva.
The disabled are given the runaround for public services when what they really need is a doorstep service.
DISABLED Malaysians in Selangor were delighted to hear, a fortnight ago, that they now qualify for a 50% discount for assessment taxes in the state. Every disabled person is given the discount for only one property.
Francis Siva, president of self-help group, the Independent Living and Training Centre (ILTC) in Rawang, Selangor, welcomed the move by the authorities.
However, he pointed out that the state could have done better by going all the way and giving a 100% waiver to make it truly worthwhile for the handicapped.
“To do so would not be big money for the government,” says Francis, 54, who was paralysed from his neck down in a road accident almost 30 years ago.
“For the disabled, though, the cut would make a world of difference as not many are able to own houses in the first place,” adds Francis.
“For those that do, it is usually after their parents die and leave their property to them,” Francis explains.
“Most disabled people can’t even afford to rent a house because they are poor. For those who are able to, they come across landlords who flatly refuse them, claiming they will bring them bad luck!”
Some disabled persons are able to place a downpayment for a home from the insurance money they get after they become handicapped though accident or illness.
But they still have to struggle, Francis says, with other expenses related to their disabilities, like purchasing catheters, diapers for urinary problems, wheelchairs, medical beds, medicines and so on.
Francis, who has been working with the disabled poor for more than a decade, also cautions that some things may look good on paper, but when it comes to the real thing of getting it, it’s often another story.
“When working with the disabled, things must be done at their doorstep,” Francis stresses, “and don’t give the handicapped a runaround for services.”
The idea of discounts for the disabled in assessment taxes, he believes, was mooted first in Selayang almost two years ago.
When several disabled persons approached the local government in Gombak, those at the frontline had no clue as to what it was or what they had to do to qualify for it.
“As a result, our disabled members who took the trouble to get there, in spite of all their difficulties, became not only confused but dejected by the whole exercise,” Francis points out.
“This is why we need a doorstep service. It is heartless and downright cruel of the able-bodied to expect people who can’t walk to run around from one department to another just to get information that is supposed to help them and make their lives easier.
“Special counters should be available to disabled persons, and frontline staff should be trained on how to help persons with special needs. Information should also be available on the website, with a hotline to call,” concludes Francis.
DW (who wishes to remain anonymous) became blind in both eyes six years ago. He can’t believe the “torture” he has had to go through to apply for the discount. His application status is still pending since last year.
He first heard about the discount at his local council office when he bumped into a stranger who used a wheelchair. DW and his sighted wife wasted no time in getting the necessary information from the land and property valuation department.
But their frustration began when an officer attended them after a long wait. The couple were quizzed on a myriad of matters and finally given a set of forms to fill in.
DW took pains to complete everything that was required, including a copy of the Sale and Purchase Agreement and forms that needed to be endorsed by a commissioner of oaths or an equivalent.
After having the forms duly stamped and endorsed at a fee, DW and his wife drove straight to the local council to personally hand in all the necessary documents.
They were told that an officer would also make an inspection visit to their house as part of the processing procedure. But no one came for months.
When DW called the office, he was told that an officer had visited his house (unannounced, and without making an appointment) and since there was no one in, they couldn’t complete the process.
When they asked to make an appointment for another visit, they were told that the officer would turn up as and when he or she liked without prior notice.
Another visit was made – and again, it happened at a time when the couple wasn’t in. (They discovered this after calling them up again a month later.)
After further months of total silence, DW and his wife received a letter enquiring about the personal particulars of their children who were both residing overseas and their income details.
“Is this what the Government means when they say they want to help the disabled?” he wonders.

Thursday, 13 June 2013

MPS hits brakes on cable-car project

MPS hits brakes on cable-car project


BATU CAVES: THE Selayang Municipal Council (MPS) has issued a stop-work order on the cable car project initiated by the Batu Caves Temple management.
This followed the recent Selangor Economic Action Council meeting to resolve issues of illegal buildings within the temple's compounds.
The temple committee is alleged to have failed to submit the building plans for structures built in the temple complex.
According to MPS president Mohd Azizi Mohd Zain the State government had given him six months to solve the issue of building structures which had not been approved by the council. This included the 42.7m high Lord Murugan statue.
The statue, which cost RM2.5 million, was unveiled in 2006 during the Thaipusam celebration. Construction of the statue took three years to complete.
Azizi said 20 buildings and some idols in the temple area were deemed to be illegal structures as no building plans were submitted to the council although the structures had already been built many years earlier.
Azizi said the temple management had to submit building plans to comply with the regulations before the council could lift the stop-work order on the cable-car project.
"The cable-car project was given the green light early this year but was stalled due to building discrepancies involving safety which had to be resolved first," he said.
He said the council is still waiting for the temple management to submit the building plans which it requested early this year.
"In order for the cable car project to resume, they need to submit the building plans for reasons of public safety," he said.
Azizi said the order to submit building plans was not only served to the Batu Caves temple management but also to the Seni Silat Lincah organisation, YTL batching plant and Dolomite Properties Sdn Bhd.
"All of these organisations did not submit their building plans and we want them to do so or MPS will be issuing them compounds for building illegal structures," he said.
The Sri Maha Mariamman Devasthanam temple management, which is the caretaker of the Batu Caves' temples and complex facilities, had in an earlier report said that it planned to complete the cable car project by the next Thaipusam.
Temple committee chairman Datuk R. Nadarajah said the cable-car project would benefit the elderly and disabled who are unable to climb the 272 steps leading to the cave temple.
At press time, the temple management could not be contacted for comments.
Mohd Azizi Mohd Zain says the temple management has to comply with the council’s regulations

Bundle of joy for dad

Thursday June 13, 2013

Bundle of joy for dad

Wheel Power
By ANTHONY THANASAYAN


THERE is no greater joy for a man than this: to become a first-time father of a child. And the feeling of jubilation is heightened if you happen to be a disabled dad.
As Father’s Day approaches this Sunday, Jeyaraj Santraju is feeling on top of the world.
“After years of waiting for a child, God gave my wife and I, a beautiful baby boy last month – just in time for Father’s Day!” says Jeyaraj, 35, who resides in Rawang, Selangor.
Jeyaraj, a paraplegic, is married to 38-year-old Bavani who is non-disabled. The couple fell in love and married six years ago.
“Having little Phavickneyaraj in our lives elicited mixed feelings for me,” says Jeyaraj. “I feel extremely proud and happy to become a father. Yet, I’m a little nervous as to whether I can live up to my boy’s expectations and be a great father to him, with my wheelchair and all. Being a father comes with a huge responsibility.”
Jeyaraj was working as a technician in Singapore when he was involved in an industrial accident in 2006. The doctors told him that he would be bedridden for life, but he surprised them when he started sitting up in his bed and wheelchair within a week.
After three months, Jeyaraj was out of the rehabilitation centre and returned to Malaysia to start a new life.
Jeyaraj had been dating Bavani for two years prior to the accident, and he was faced with the nightmare of losing the love of his life. But the disability only made the couple’s love grow stronger for each other. They married a year later.
“I don’t know what a father’s love is because I grew up surrounded by my siblings and my mother,” admits Jeyaraj. “But I would like to bring my son up to accept people, despite their differences. I will be there for him in every situation, even though I am disabled. I can’t wait to see him crawl, utter his first words, and of course, I can’t wait to hear him call me ‘papa’.
“My wheelchair will not stop me from doing everything I can to be my boy’s hero in every sphere, where it involves play, studies or sports.”
Jeyaraj recalls the first time he gingerly picked up his little boy.
“He was so fragile. I was worried that I might drop him. I promised my wife that I would take turns to care for him at night,” shares Jeyaraj.
“I enjoy feeding him, changing his diapers and reading bedtime stories to him. All these chores require me to be extra careful in ensuring that my wheelchair locks are firmly in place.
“I know the day will come when Phavickneyaraj will pop the inevitable question that all wheelchair dads get asked: why are you in a wheelchair? When that happens, I believe I will have the right answer for my little boy.”
In the meantime, Jeyaraj’s wish for Father’s Day is that all local councils will change their mindsets about disabled people.
“Local councils should take steps to make the environment disabled-friendly. As a father who is a wheelchair-user, I would like to take my little boy to the playground, but I worry that it may not be accessible to wheelchairs. In fact, I have dreams of taking my son jungle-trekking, and participating in adventure sports when he is older.
“Becoming a parent is not the dream of the able-bodied only. They are very much the hopes of disabled persons, too, no matter what their handicapping conditions.”