NEW MINISTER FOR WELFARE MINISTER OF MALAYSIA

NEW MINISTER FOR WELFARE MINISTER OF MALAYSIA
Badan Latihan dan Hidup Berdikari Malaysia (ILTC) pada 23hb Mac 2016 menyerahkan memorandum kepada ahli-ahli parlimen mendesak supaya golongan orang kurang upaya (OKU) dikecualikan daripada cukai barangan dan perkhidmatan (GST).

Disabled Members Protest

Disabled Members Protest
Disabled Members Protest at JPJ Wangsa Maju

ILTC Malaysia members staged a protest outside JPJ Wangsamaju KL.

ILTC Malaysia members staged a protest outside JPJ Wangsamaju KL.
Disabled group’s protest disabled drivers required to produce doc's medical report.

Tuesday 13 April 2010

Flashback: Images From the ILTC's Folder

Flashback: Images From the ILTC's Folder A meeting for exchanging of our views.

April 12, 2010 00:29 AM

Malaysia Signs Global Declaration On Parkinson's Disease

KUALA LUMPUR, April 11 (Bernama) -- Malaysia became a signatory of the Global Declaration on Parkinson's disease today, reaffirming the government's commitment towards the sufferers.

Health Minister Datuk Seri Liow Tiong Lai said the government was fully aware of the sufferings of the Parkinson's community.

"Awareness programmes which highlight the plight of Parkinson's disease patients is an important first step towards improving care and support for them.

"I hope the signing of the Global Declaration on Parkinson's disease today and celebration of World Parkinson's Day 2010 will signify the beginning of a better tomorrow for the Malaysian Parkinson's community," he said after signing the declaration, here, Sunday night.

Also present were the CEO of Yayasan Budi Penyayang Datuk Lela Mohd Ali, expert on Parkinson's brain surgery and consultant neurosurgeon Prof Tipu Aziz and Negeri Sembilan Parkinson's Society president Gharizah Hashim.

Liow said, with the signing of the declaration, Malaysia had now joined 14 other countries such as Australia, India, Canada, Switzerland and the United States which had signed the declaration.

The declaration calls on global leaders and healthcare providers to take strong and decisive action in implementing effective management of strategies to enable patients to live a better life.

Liow in his speech said patients in the country had access to appropriate care and treatment at both government and private hospitals.

"Parkinson's disease is a brain disorder that mainly affects elderly people. It leads to slowness of movement, uncontrollable trembling of the hands and body stiffness.

"There is presently no treatment that can either cure or slow down the progression of Parkinson's disease and patients have to endure physical and mental disabilities for their entire live," he said.

At a press conference later, Liow said it was estimated that 15,000 to 20,000 Malaysians suffered from Parkinson's disease.

He said the figure was expected to rise to 25,000 to 30,000 by 2020 and at least 1,500 new cases occurred each year.

"In terms of specialist manpower, the currently proposed norm for Malaysia is one neurologist for every 250,000 people.

"With an estimated population of 28 million in 2009, we need 112 neurologists. But presently we have only 52 in the country," he said.

-- BERNAMA

22-year-old with growth disability and hypertension can’t get aid




Monday April 12, 2010
22-year-old with growth disability and hypertension can’t get aid

SEREMBAN: Twenty-two-year-old S. Avinesh Singh’s looks belie his age.

Suffering from growth disorder, the youth with Russell-Silver Syndrome barely weighs 25kg and is less than a metre tall.

In addition to being both speech and hearing impaired, Avinesh, who is born with only one kidney, has hypertension and had undergone several surgeries since birth.
Seeking help: Arumugam carrying Avinesh with Premjit beside him.

And, despite being inflicted with these ailments, he has been denied aid by the state Welfare Department.

“I was told that they would look into my son’s appeal but nothing positive came out of it,” said single mother J. Premjit Kaur, 53, who suffers from asthma and psychiatric problems.

Premjit’s sister, Nirmal Kaur, 49, said their siblings had got together to provide help to the family for the time being.

“I was shocked when a department officer told me that since Premjit was already getting RM100 in aid, her son was not eligible,” she said, adding that she first submitted an application for Avinesh in 2004.

Her nephew, she said, was also required to go to Universiti Malaya Medical Centre regularly for check-ups.

“Both mother and son are in genuine need of aid,” added Nirmal.

Rahang assemblyman K. Arumugam said the department should have a standard set of rules when it came to approving aid.

“I was told that the department will give RM300 to a disabled person, who is gainfully employed and earning RM1,000 and above. Those earning less will get RM200.

“But what about people who are unable to work at all?” he asked